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NFT: CT Scan: Advice

GruningsOnTheHill : 6/15/2018 5:38 pm
Turning to BBI for medical advice.

In a nutshell, I had chronic problems in my right ear as a kid; 3 reconstructive surgeries over the years later, I have a 15% hearing loss on the right side. Left ear has been fine...up until very recently.

Both eardrums have had tubes for years due to poorly-functioning eustachian tubes.

Long story short, I have suddenly been experiencing hearing loss, tinnitus, and drainage in the left ear for 3 weeks now; no infection. Various blood tests have come back negative, and the doctor is stumped. I went for a CT scan this morning to rule out a tumor at the base of the brain. Called the facility at 4:30 this afternoon to see if the report is ready, and the nurse told me, "So sorry...it is done, but it's awaiting the radiologist to sign off on it, and that likely won't happen until Monday." She seemed sympathetic, and I told her that I will be twisting in the wind all weekend with the notion of a potentially life-changing situation that would go along with a positive result.

"Oh I can imagine; I feel so badly. Give me your cell number, and I will keep an eye on it to see if for some reason it gets ok'd. If so, I will contact you right away."

My co-workers seem confident that if the tech had actually spotted a tumor, then I would have been notified by my doctor hours ago to get right into his office. Does this sound reasonable to those of you with experience? Would they let me go for 2+ days if they had an inkling there was a tumor?

Thanks...
My gut says you’d be notified right away  
UConn4523 : 6/15/2018 5:55 pm : link
about an emergency. Only advice is to go get some exercise and do a bunch of shit this weekend to take your mind off it. Good luck man.
Doubt you would be left waiting like that  
jcn56 : 6/15/2018 6:05 pm : link
I can speak from experience. Turned out to be a false alarm, but it was one hell of a scare. In my case they didn't let me leave the facility, I went straight to the doctor.
RE: My gut says you’d be notified right away  
Percy : 6/15/2018 6:31 pm : link
In comment 13992283 UConn4523 said:
Quote:
about an emergency. Only advice is to go get some exercise and do a bunch of shit this weekend to take your mind off it. Good luck man.

My own frequent experiences with CTs (unavoidable) tell me the same thing: you'd be told right away. Your doc ought to have immediate access to your scan with or without the radiologists's report. He can read the damned thing (or ought to be able to do so -- if not, change docs).
The radiologist  
bc0312 : 6/15/2018 7:56 pm : link
Won’t let you leave the facility if he/she found something during the scan. It takes time for them to write up the report but they look at the scans as they are take.
Agree with the other comments  
tangled up in blue : 6/15/2018 8:02 pm : link
If it is bad you find out about it very quickly. Best of luck to you. Are you being followed by an ENT?
When they did a mri on left side and found 2 tumors also the  
fredgbrown : 6/15/2018 8:15 pm : link
mass had started to spread down my leg .... I was called by doctor not too long after the mri was done. If it is something potentially serious they get right back in...
Grunings....  
rmc3981 : 6/15/2018 10:20 pm : link
As a surgeon, ANYTIME I have sent someone for an MRI or CT and there is something nefarious, the radiologist doesn't wait to dictate the report, they call right away. I would be more than willing to bet that this is the case here and there is no reason to unduly worry. Many radiology sites have a website portal where you can pull up your own results. I do not know if this is the case with where you went, but you might want to go to their internet site and check. Wishing you all the best and I would expect that the test will not show anything to worry about.
I agree with your co-workers -  
short lease : 6/16/2018 3:15 am : link

As a young child (about 4) I put playdough in my ear (left side) and forgot about it for over a 24 hour period ( I am not kidding - I wish I was). When my mother had given me a bath and was cleaning my ears there was a blue color coming off on the swab. She immediately took me to the Dr and he pulled out the piece of play dough - that had damaged the ear drum.

Most of my childhood to my later teens were spent in the EN&T's office. 5-6 surgeries since I was 9 years old. Some reconstructive some just "tube insertions" to help with drainage. My damage was at the top of the drum (a hole) so any time water got in there it stayed trapped behind the drum .... and instant infection. If the hole was at the bottom of the drum, the water would have been able to drain much easier obviously.

Anyway, enough about me - the point is I have dealt with a lot of ear problems over the years. What bothers me is you say that you are having drainage (puss?) and there is "no infection"? Are you sure about that? Drainage for me meant automatic infection and then another bottle of ear drops (otic suspension - not the solution). I spent many a dry summer - no pools or beaches. I went actually but, I just couldn't get my head wet. That sucks if you love the water (like me).

I would bet money you do not have a tumor(s) - but, if you are having drainage - that is the first sign of an infection.

Good luck Grunings !! I know the next 48 hours are going to seem like 48 days but, I really would not worry (I know that is easy for me to say) : ) ). But, I really am confident you will be alright.

Keep us posted either way.
Hello  
GruningsOnTheHill : 6/16/2018 8:09 am : link
and a sincere "thank you" to all for the reassuring responses. I'm more than cautiously optimistic now that whatever my problem is, I do not have a brain stem tumor.

It's times like this where one realizes the disadvantages of living outside the NY metropolitan area/Los Angeles/Chicago: finding a doctor for an out-of-the-ordinary problem isn't so easy.

I have had a long history of ear problems; haven't put my head under water in a pool/ocean for 15 years. As someone above pointed out, I too have always associated "drainage" with "infection." I have been to two different ear doctors over the past 3 weeks, and both say there is no infection. The most recent guy is an old-timer with pretty serious credentials, though I am having doubts. Doctor is stumped, and my wife noted him checking google for answers. Blood test for something called "granulomatosis with polyangiitis" came back negative (doctor: "A false negative in the early stages of this rare disease is common, so you may need to re-test every month for YEARS.") The aforementioned CT scan appears to be ok. What scared the hell out of me on my last visit with this doctor on Thursday was when he said a best-case outcome will be that I will require a hearing aid on my left ear, which had perfect hearing 3 weeks ago.

I do have an appointment on Monday morning with another local doctor who spent many years at Columbia Presbyterian before moving down here for the warmer climate; the fact that he doesn't take my insurance is of little concern at this juncture. Whatever this problem is, it had been painless...up until yesterday afternoon when it flared up to a steady throbbing pain that felt like a standard middle ear infection. Antibiotics I have been prescribed do nothing so far as I can tell. Pain seems to have subsided, though I feel as if I'm sitting idly while Rome burns. Monday morning's appointment with the new doctor can't get here soon enough.

#1 the majority of tumors are benign and #2  
gtt350 : 6/16/2018 10:23 am : link
you might not have one.
I highly reccommend going to Johns Hopkins  
gtt350 : 6/16/2018 10:25 am : link
in Baltimore in any worst case scenerio.
They are geniuses down there and have the cutting edge of technology
RE: Hello  
short lease : 6/19/2018 6:28 am : link
In comment 13992561 GruningsOnTheHill said:
Quote:
and a sincere "thank you" to all for the reassuring responses. I'm more than cautiously optimistic now that whatever my problem is, I do not have a brain stem tumor.

It's times like this where one realizes the disadvantages of living outside the NY metropolitan area/Los Angeles/Chicago: finding a doctor for an out-of-the-ordinary problem isn't so easy.

I have had a long history of ear problems; haven't put my head under water in a pool/ocean for 15 years. As someone above pointed out, I too have always associated "drainage" with "infection." I have been to two different ear doctors over the past 3 weeks, and both say there is no infection. The most recent guy is an old-timer with pretty serious credentials, though I am having doubts. Doctor is stumped, and my wife noted him checking google for answers. Blood test for something called "granulomatosis with polyangiitis" came back negative (doctor: "A false negative in the early stages of this rare disease is common, so you may need to re-test every month for YEARS.") The aforementioned CT scan appears to be ok. What scared the hell out of me on my last visit with this doctor on Thursday was when he said a best-case outcome will be that I will require a hearing aid on my left ear, which had perfect hearing 3 weeks ago.

I do have an appointment on Monday morning with another local doctor who spent many years at Columbia Presbyterian before moving down here for the warmer climate; the fact that he doesn't take my insurance is of little concern at this juncture. Whatever this problem is, it had been painless...up until yesterday afternoon when it flared up to a steady throbbing pain that felt like a standard middle ear infection. Antibiotics I have been prescribed do nothing so far as I can tell. Pain seems to have subsided, though I feel as if I'm sitting idly while Rome burns. Monday morning's appointment with the new doctor can't get here soon enough.




Because of also having a long history of ear problems G - I have been thinking or wondering - whatever the proper word or phrase is....(maybe I am just noisy?) : ) ---- how you made out at the DA yesterday?

I am betting that you got a clean bill of health ... no tumors? Anyway any updates? Hope all the news was good ....
My mother had similar experiences  
JonC : 6/19/2018 9:54 am : link
and the issue for her was a few of the tiny bone structures in the inner ear were "loose". You would've been notified right away if it were something serious that needed further testing, imv.
My bet...  
WideRight : 6/19/2018 10:00 am : link
Cholesteatoma.

benign
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