Hey guys. Was diagnosed lastweek with testicular cancer. 43 years old. Noticed one of my boys doubled in size past few months and ultrasound confirmed it. I had surgery yesterday in Saratoga springs to remove the testicle..
I’m just wondering if anyone has experience with this? I know it’s kind of rare cancer but very treatable. But I also heard you want to find someone who sees it a lot.
Right now my care team is in Saratoga. I have not seen an oncologist yet. But I do know ct scan was good and tumor markers negative.
I have been thinking of forgoing the local care team and going to Sloan memorial? I assume they probably see way more of this then anything upstate? Guess I’m just wondering if this is good idea to go to a bigger place like Sloan instead of the local folks in Saratoga/Albany?
As a PSA, my brother was diagnosed with breast cancer several months ago. Prognosis is great, surgery to remove it, he's been going through some preventative rounds of chemo in case there were any miscroscopic cancer cells left in his system as he's still very young to prevent trouble down the road. Chemo is a bitch. The first few rounds really took a toll on him but he's in a less intense chemo cycle now until he finishes in a couple months, thank God.
Guys, check yourselves. Not just your balls but also your nipples.
I second the suggestion to see the best doctor your insurance pays for. The national cancer centers are usually a good choice.
Also, I'm not an expert in this, but if you don't yet have children and do want them, maybe look into banking your sperm. I don't know if the cancer impact virility or ability to have kids. Your doctors obviously will advise you here.
Good luck.
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But an opinion from MSK will be worth its weight in gold, even if you choose to go elsewhere. Peace of mind is very important. Good luck.
Can't help you with your questions, but best of luck to you.
My point is I would investigate Boston if I were in your position.
I put his business in the link if you want to try and contact him. He could point you at his doctors.
Business - ( New Window )
Take care of yourself, I wish you all the best.
Do they give you a prosthetic testicle to replace the removed one?
As a PSA, my brother was diagnosed with breast cancer several months ago. Prognosis is great, surgery to remove it, he's been going through some preventative rounds of chemo in case there were any miscroscopic cancer cells left in his system as he's still very young to prevent trouble down the road. Chemo is a bitch. The first few rounds really took a toll on him but he's in a less intense chemo cycle now until he finishes in a couple months, thank God.
Guys, check yourselves. Not just your balls but also your nipples.
what was up with his nipples if you dont mind me asking? I knew men can get breast cancer, but didnt know symptoms were nipple related at all
I had an "interesting" case. You never want an interesting case of cancer. Not only is it more complicated to treat but every doctor and intern wants to examine you. And with rectal cancer that is not fun. But what I did find is that the top oncologists do help out other car givers. My case was put up in front of a group of doctors from sloan, mayo and the Cleveland center. They discussed my case and came up with a treatment plan that was given to my locally.
I wouldn't recommend going far for the chemo treatments. Once the type of chemo and the dosage is determined, the care is pretty simple.
Sloan also has treatment centers located in other places than nyc. There might be one closer to you.
Feel free to reach out if you want to hear my experience with three chemo. I'd be happy to help.
As a PSA, my brother was diagnosed with breast cancer several months ago. Prognosis is great, surgery to remove it, he's been going through some preventative rounds of chemo in case there were any miscroscopic cancer cells left in his system as he's still very young to prevent trouble down the road. Chemo is a bitch. The first few rounds really took a toll on him but he's in a less intense chemo cycle now until he finishes in a couple months, thank God.
Guys, check yourselves. Not just your balls but also your nipples.
Hard, noticeable lump on one nipple. Had it checked out pre-covid. A couple doctors looked at it and were reassuring that it wasn't a big deal but he to get it needle biopsied. Then covid hit. He wasn't able to schedule it for awhile but found out in November it was in fact cancer.
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for a fast recovery.
As a PSA, my brother was diagnosed with breast cancer several months ago. Prognosis is great, surgery to remove it, he's been going through some preventative rounds of chemo in case there were any miscroscopic cancer cells left in his system as he's still very young to prevent trouble down the road. Chemo is a bitch. The first few rounds really took a toll on him but he's in a less intense chemo cycle now until he finishes in a couple months, thank God.
Guys, check yourselves. Not just your balls but also your nipples.
Hard, noticeable lump on one nipple. Had it checked out pre-covid. A couple doctors looked at it and were reassuring that it wasn't a big deal but he to get it needle biopsied. Then covid hit. He wasn't able to schedule it for awhile but found out in November it was in fact cancer.
wow. thats crazy
I hope it works out for the best for you.
A similar option would be to seek a second opinion regarding therapy at a big center (Sloan-Kettering to your south, Dana Farber to the east). They could communicate and collaborate with your local oncologists.
Testicular cancer is very treatable. Good luck!
My friend's brother had bladder cancer. He opted for local treatment after the doctors at MSK recommended removal. He died a few years later. The best hospitals are the best for a reason.
My friend's brother had bladder cancer. He opted for local treatment after the doctors at MSK recommended removal. He died a few years later. The best hospitals are the best for a reason.
Not necessarily. MSK is useful for rare/unusual cancers, but they overtreat garden variety ones. I know people who have died as a result.
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go there.
My friend's brother had bladder cancer. He opted for local treatment after the doctors at MSK recommended removal. He died a few years later. The best hospitals are the best for a reason.
Not necessarily. MSK is useful for rare/unusual cancers, but they overtreat garden variety ones. I know people who have died as a result.
Well bladder cancer is not especially rare and MSK wanted to treat it aggressively, what you might call overtreat, and he decided not to take their advice. And it cost him his life.